Personal information

Caroline   Terwee

Dr. Caroline Terwee is associate professor in Clinimetrics, epidemiologist by background with expertise in the development and evaluation of outcome measures. She is coordinator of the Knowledge Center on Measurement Instruments of the VU University Medical Center (, Department of Epidemiology and Biostatistics, in Amsterdam, which aims to optimize the quality of measurement and quality of measurement instruments used in medical and health science research, though consultation, education, and research. She is founder of the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) initiative, an international group who developed consensus-based standards for performing and evaluating studies on the measurement properties of outcome measures. She is also involved in the Core Outcome Measures in Effectiveness Trials (COMET) initiative, which aims to brings together researchers interested in the development and application of agreed standardised sets of outcomes (core outcome sets). Caroline has a special interest in the methodology and performance of systematic reviews of measurement properties. She is coordinator of the Dutch-Flemish PROMIS group who aims to translate and implement the PROMIS system of highly reliable, valid, flexible, precise, and responsive assessment tools that measure patient–reported health status ( in the Netherlands. Caroline is chair of ISOQOL-NL (Dutch Working Group on Research in Health Measurement and co-chair of the NFU expertgroup on Patient-Reported Outcomes.

Caroline obtained an MSc in Human Movement Sciences at the VU Univeristy of Amsterdam in 1993 and followed the Postgraduate Epidemiology Programme of the EMGO Institute and the Department of Clinical Epidemiology and Biostatistics of the VU University Medical Center. From 1995-2000 she worked at the Department of Clinical Epidemiology and Biostatistics of the Academic Medical Center of the University of Amsterdam, where she wrote her PhD thesis on ‘Quality of life in patients with Graves‘ ophthalmopathy’ (2000). Since 2000 she is working as assistant professor in Clinimetrics at the EMGO Institute.