Number of publications in JAMDA (IF 5.8): 24. Total number of publications (Google Scholar, March 2017): 217; 1st author: 83; last author: 42. August 2017: H-index: 34. Citations: > 3400.

ORCID: 0000-0002-9063-7501

The most important publications (>145) are retrieved from PubMed, at


Publications 2016- 

Peer-reviewed international journals

Zimmerman S, van der Steen JT. It’s not a small world after all. J Am Med Dir Assoc 2018, accepted.

Hughes JC, Volicer L, van der Steen JT. Complexity and gaps:  the high-hanging fruit of dementia and palliative care research. Palliat Med 2018, in press.

van der Steen JT, van den Bogert CA, van Soest-Poortvliet MC, Fazeli Farsani S, Otten RHJ, ter Riet G, Bouter LM. Determinants of selective reporting: a taxonomy based on a content analysis of a random selection of the  literature. PLOS ONE 2018, in press.

Boogaard JA, de Vet HCW, van Soest-Poortvliet MC, Anema JR, Achterberg WP, van der Steen JT. Effects of two feedback interventions on end-of-life outcomes in nursing home residents with dementia: a cluster-randomized controlled three-armed trial. Palliat Med 2018, epublished 1 January.

Lennaerts H, Groot M, Steppe M, van der Steen JT, Van den Brand M, van Amelsvoort D, Vissers K, Munneke M, Bloem BR. Palliative care for patients with Parkinson's disease: study protocol for a mixed methods study. BMC Palliat Care 2017 Nov 25;16(1):61.

Zomer TP, van der Maaden T, van Gageldonk-Lafeber AB, de Greeff SC, Verhoef L,** / van der Steen JT.** Incidence of pneumonia in nursing home residents with dementia in three Dutch studies. Epidemiol Infect 2017;145(11):2400-2408. **equal contribution.

Boogaard JA, Werner P, Zisberg A, van der Steen JT. Trust of family caregivers of nursing home residents with advanced dementia in health professionals. Geriatr Gerontol Int 2017, epublished July 20.

Lemos Dekker N, Gysels M, van der Steen JT. Professional caregivers’ experiences with the Liverpool Care Pathway in dementia: an ethnographic study in a Dutch nursing home. Palliat Support Care 2017, epublished July 11.

van der Steen JT, Di Giulio P, Charrier L, Giunco F, Monti M, Gentile S, Villani D, Toscani F. Pneumonia in nursing home patients with advanced dementia: decisions, intravenous rehydration therapy, and discomfort. Am J Hosp Palliat Med 2017, epublished May 22.

van der Steen JT, van Soest-Poortvliet MC, van der Wouden JC, Bruinsma MS, Scholten RJ, Vink AC. Music-based therapeutic interventions for people with dementia. Cochrane Database Syst Rev 2017 May 2;5:CD003477.

van der Steen JT, Lemos Dekker N, Gijsberts MJH-E, Vermeulen LH, Mahler MM, The BA-M. Palliative care for people with dementia in the terminal phase: qualitative studies to inform service development. BMC Palliative Care 2017, Apr 28;16(1):28.

Parsons C, van der Steen JT. Antimicrobial use in patients with dementia: Current concerns and future recommendations. CNS Drugs 2017, 28 March, epublished.

Pieper MJC, van der Steen JT, Francke AL, Scherder EJA, Twisk JWR, Achterberg WP. Effects on pain of a stepwise multidisciplinary intervention (STA OP!) that targets pain and behavior in advanced dementia: A cluster randomized controlled trial. Palliat Med 2017, epublished February 1.

van der Steen JT, Deliens L, Koopmans RTCM, Onwuteaka-Philipsen BD. Physicians’ perceptions of suffering in people with dementia at the end of life. Palliat Support Care 2017, epublished January 23.

van der Steen JT, Sternberg S, Volicer L. Palliative care in dementia 1986-2016: progress and remaining challenges. J Am Med Dir Assoc 2017;18(2):190-191. (December 31, 2016 epublished).

Brazil K, Galway K, Carter G, van der Steen JT. Providing optimal palliative care for persons living with dementia: a comparison of physician perceptions in the Netherlands and the United Kingdom. J Palliat Med 2017;20(5):473-477.

Hendriks SA, Smalbrugge M, Hertogh CMPM, van der Steen JT. Changes in care goals and treatment orders around the occurrence of health problems and hospital transfers in dementia: a prospective study. J Am Geriatr Soc 2017;65(4):769-776.

Hendriks SA, Smalbrugge M, Deliens L, Koopmans RTCM, Onwuteaka-Philipsen BD, Hertogh CMPM, van der Steen JT. End-of-life treatment decisions in nursing home residents dying with dementia in The Netherlands. Int J Geriatr Psychiatr 2016, December 29, epublished.

Hendriks SA, Smalbrugge M, van Gageldonk-Lafeber AB, Galindo-Garre F, Schipper M, Hertogh CMPM, van der Steen JT. Pneumonia, intake problems, and survival among nursing home residents with variable stages of dementia in the Netherlands: Results from a prospective observational study. Alzheimer Dis Assoc Disord 2016, November 15, epublished.

Klapwijk MS,  Caljouw MAA, Pieper MJC, van der Steen JT, Achterberg WP. Characteristics associated with quality of life in long-term care residents with dementia: A cross-sectional study. Dement Geriatr Cogn Disord 2016;42(3-4):186-197.

Rauh SP, Heymans MW, Mehr DR, Kruse RL, Lane P, Kowall NW, Volicer L, van der Steen JT. Predicting mortality in patients treated differently: Updating and external validation of a prediction model for nursing home residents with dementia and lower respiratory infections. BMJ Open 2016, Aug 30;6(8):e011380.

van der Maaden T, de Vet HCW, Achterberg WP, Boersma F, Schols JMGA, Mehr DR, Galindo-Garre F, Hertogh CMPM, Koopmans RTCM, van der Steen JT. Improving comfort in people with dementia and pneumonia: a cluster-randomized trial. BMC Med 2016, Aug 11;14(1):116.

van der Maaden T, van der Steen JT, Koopmans RTCM, Doncker SMMM, Anema JR, Hertogh CMPM, de Vet HCW. Symptom relief in patients with pneumonia and dementia: implementation of a practice guideline. Int J Geriatr Psychiatr 2016, epublished, July 28.

Van den Block L, Smets T, van Dop N, Adang E, Andreasen P, Collingridge Moore D, Engels Y, Finne-Soveri H, Froggatt K, Gambassi G, Kijowska V, Onwuteaka-Philipsen BD, Pasman R, Payne S, Piers R, Szcerbinska K, ten Koppel M, Van Den Noortgate N,  van der Steen JT, Vernooij-Dassen M, Deliens L, on behalf of PACE. Comparing palliative care in care homes across Europe (PACE): protocol of a cross-sectional study of deceased residents in six EU countries. J Am Med Dir Assoc 2016;17(6):566.e1-7.

van der Steen JT, Galway K, Carter G, Brazil K. Initiating advance care planning in dementia: ambiguity among UK and Dutch physicians. Arch Gerontol Geriatr 2016;65:225-230.

de Vries MW, Visscher C, Delwel S, van der Steen JT, Pieper MJC, Scherder EJA, Achterberg WP, Lobbezoo F. Orofacial pain during mastication in people with dementia: Reliability testing of the Orofacial Pain Scale for Non-Verbal Individuals (OPS-NVI). Behavl Neurol 2016, article ID 3123402.

Pieper MJC, Francke AL, van der Steen JT, Scherder EJA, Twisk JWR, Kovach CR,  Achterberg WP. Effects of a stepwise multidisciplinary intervention for challenging behavior in advanced dementia: a cluster randomized controlled trial. J Am Geriatr Soc 2016;64(2):261-269.

van der Steen JT, Radbruch L, de Boer ME, Jünger S, Hughes JC, Larkin P, Gove D, Francke AL, Koopmans RTCM, Firth P, Volicer L, Hertogh CMPM; on behalf of the European Association for Palliative Care (EAPC). Achieving consensus and controversy around applicability of palliative care to dementia. Int Psychogeriatr 2016;28(1):133-145.


Book chapters 2017 -

Davies N, Klapwijk MS, van der Steen JT. Palliative Care and Dementia. In: MacLeod R, Van den Block L. Textbook of Palliative Care. Springer Major Reference Works. In press.

Helton MR, van der Steen JT. End of Life Care. Chapter 23 in: Chronic Illness Care: Principles and Practice. Timothy P. Daaleman and Margaret R. Helton (Eds). Springer. In press.

Sampson EL, Van Den Noortgate NJ, van der Steen JT. Palliative care of patients with dementia and pain. Pain in Dementia. Chapter 22, pp 293-304. Editors: Lautenbacher S, Gibson SJ. International Association for the Study of Pain (IASP) Press. China: Wolters Kluwer, 2017.

Hughes JC, van der Steen JT. End-of-life and palliative care in dementia. Chapter 34. In: Ames DA, O’Brien J, Burns A (Eds). Dementia 5th Edition. Boca Raton FL, USA: CRC Press, Taylor & Francis Group, 2017.


See PubMed for older publications

In PubMed, searching for the author, pleas use:

With  "van der Steen JT" you will find all articles published in peer-reviewed journals, except for the following:

Steen J van der, Ooms M, Muller M, Wal G van der, Ribbe M. Wel of niet curatief behandelen van een pneumonie bij psychogeriatrische patiënten: evaluatie van een richtlijn voor verpleeghuisartsen. [Whether or not to treat pneumonia curatively in (demented) psychogeriatric patients: evaluation of a guideline for nursing home physicians.] Tijdschrift voor Gerontologie en Geriatrie 2002;33:142-149. 

Kampen J van, Gross R, Schultink W, Usfar A. The micro-biological quality of street foods as compared to home-prepared foods and foods from tourist hotels. International Journal of Food Science and Nutrition 1998;49:17-26. 

Mattheij JAM, Swarts JJM, Lokerse P, Kampen JT van, Heide D van der. Effect of hypothyroidism on the pituitary-gonadal axis in the adult female rat. Journal of Endocrinology 1995;46:87-94.