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Bregje  Onwuteaka-Philipsen

Bregje Onwuteaka-Philipsen (health scientist) is professor of end-of-life research. She leads the research line ‘public health at the end of life’ at the department of public and occupational health.  Main themes of this research line are palliative care, advance care planning, and end-of-life decisions. She is program leader of the interinstitutional research program, a joint program of CCA and EMGO+, Quality of life in Cancer and Immunology.  Furthermore, she is the chair of the VUmc Expertise Center for Palliative Care in which all care, educational and research activities in the field of palliative care come together. ( https://www.vumc.nl/afdelingen/epz/ )This  Expertise Center is, together with the Palliative Care Expertise Center of AMC, the Comprehensive Cancer Organisation and 10 regional networks of palliative care part of  the Palliative Care Consortium Noord-Holland and Flevoland, aiming to achieve an as optimal as possible quality of life for all people in last phase of life in these two provinces. ( http://palliatievezorgnoordhollandflevoland.nl/ ).  In 2008 she received a career award from the Netherlands Organisation for Scientific Research (NWO, VICI scheme) for the research program 'the patient perspective in end-of-life care: personal dignity, preferences and participation'. She has ample experience in leading and participating in national and international projects.   Examples are:

  • the nationwide monitoring of end-of-life decision making and euthanasia regulation that took place every 5 years since 1990. She was involved in this study in 1995, 2001, 2005, 2010 and 2015 (the last three times as project leader). In 2001 this study was combined with a European study (EC 5th Framework), making it possible to compare end-of-life decision-making between countries for the first time.
  • PaTz: in PaTz-groups general practitioners and community nurses come together to identify patients with palliative care needs and  improve palliative care for their patients. In several projects this intervention is (further) developed, evaluated and implemented. It was awarded a Pearl for projects that stand out by the Netherlands Organisation for Health Research and Development ( ZonMw) ( www.patz.nu )
  • PACE: this is an EU FP7 project aimed at improving palliative care in long-term care facilities in 7 European countries.( http://www.eupace.eu/ )