Guides to social participation (WC2012-057)

Methods

Starting date: 01/12/2012

Design
Telephone computer assisted interviews (CATI) are used with all cohorts of youngsters with visual impairments in 2013/2014. For cohort 1 this measurement is part of wave 4, for cohort 2 this measurement is wave 3 and for the new cohort this is wave 1. Descriptive,
bivariate, multivariate and longitudinal analyses (linear mixed model analysis) will be performed to describe determinants of successful social participation.
To test the effectiveness of the “Mentor Support” intervention and to test for the added value of using experience experts asmentors, a randomized clinical trial design will be used with pre- and posttest. Outcomes will be measured for social participation in the domains of leisure activities, social (family) relations and employment within the transition phase from
adolescence and young adulthood. The three conditions over which randomization will be conducted are: 1) care as usual, 2) care as usual + Mentor Support by experience experts with VI , 3) care as usual + Mentor Support by young adults without VI. Block randomization will be used in a way that possible mentees and mentors are firstly divided into four regions of our country. Within these blocks, randomization to the three conditions will be carried out. Three repeated measurements of the cohort 3 adolescents (including all three conditions) will take place: before the start of the three conditions, just after completing the mentor support program, 6 months after completing the mentor support program. Again, telephone computer assisted
interviews (CATI) are used for these measurements.

Longitudinal analyses (linear mixed model analysis) will be performed to test the effects of the intervention. In secondary analyses, moderator variables will be included to investigate whether the intervention effects are associated with characteristics of the adolescent (gender, age, severity of impairment, educational background).